the trick is to keep breathing

IDK if y'all are aware of this, but I've really been struggling with words lately. I'm a full 40 days behind my GYWO writing pledge for Days Written, and based on an informal expectation that I would write the word count I did last year, I'm only at 55%. And it's almost June, which makes me pretty damn behind.

There are a few things I've been meaning to talk about as reasons I haven't been writing -- please note this isn't because I think I owe anybody anything (except for a few lingering comms for v understanding friends) or that I really think anyone cares. It's just interesting stuff for a dialogue, really.

The key part of me not writing is that I've been caring for my three nieces weekly. This involves a 2-hr drive to my brother's house on Monday, where I pick them up from school (METL MUM) and watch them for 3 hours, then start / help / eat dinner. After dinner I can escape to the basement if I have things to do (and often do), but 3 hours with 3 young and very energetic girls can be exhausting, so it's rare that I have any spoons to write after, say, 20:00. Tuesday I wake up early to take them to school and have like 9:00-15:00 to myself, at which point I do the same thing, just a little more tired. Wednesdays I take them to school and then drive the 2 hr back to my house, at which point usually I collapse.

and there's a lot of this that has just taken far more energy than I expected. The girls, the travel, being away from my cats and my OWN grocery shopping and my safe spaces, sleeping in a strange bed (although at this point it isn't THAT strange), the wear of scope creep as weeks went on. 3 girls for 3 hours is a lot of overstimulation, which is one of the things I'm critically sensitive too -- more likely to wear me out than almost anything else.

Part 1: Fibro Sucks

We all know spoon theory, right, but -- a lot of the time I explain fibromyalgia and other chronic pain conditions using a credit or debit card analogy. Say you've got a card and every day you get X number of task energy loaded into that card. Then every time you do an activity, you swipe the card and it charges you. Some tasks - eat breakfast, shower - might be one unit of energy, while others - work 8 hours - might be six units, or eight, depending. For most ablebodied, neurotypical people, the number of tasks they can load onto their card in the morning usually averages out about equal to the energy they need for the entire day.

With fibro, first of all, you don't know how many energy credits you're going to have on any given day. You might wake up and have a 'normal' amount of energy. Or you might wake up and only have, like, 8 tasks on the card. And you have to pick how you want to spend them. Most of the time people with chronic pain disorders wake up with fewer task energy credits in their account, comparably -- this is why we're always complaining about not being able to keep up with the dishes, the laundry, the vacuuming. Our credit cards are a lot more limited. We don't get as many tasks per day as most typical people. Most people with fibromyalgia continuously run on a deficit.

And in addition -- yeah, you can borrow from the next day: you can overcharge the card. But not only does that give you less energy for tomorrow, the bank (your body) hits you with an overdraft fee, such as extensive pain, brain fog, exhaustion, or even illness. These things compound on themselves, too, until you've built up such debt that you have to spend an entire weekend in bed.

Recovery Days: When Brain and Body Are Just Done

The problem with all of this travel and work hasn't necessarily been the care itself (although man it's been great seeing the girls like this and ALSO oh man i'm super tired) -- it's been recovery. If I get up, drive / take the girls in, put in whatever work I can manage that day, care for the girls BY MYSELF, make dinner, etc... that's a full day. That's a full day for a parent. So even when I slip downstairs at 19:00 to relax, I've still put in a lot of work. And that plus the dissonance of continuous traveling has just ... it's worn down my credit card a lot.

The problem has been that I'll come home and do nothing Wednesday and usually need Thursday as a light-brain-and-body day until I'm recovered enough to feel like myself. By the weekend (when I see Actual Husband) I'm usually alright, but at that point I'm trying to forward-bank energy for next week's child care. When you run on a deficit like this, well -- my time w the girls is my top priority, they're my nieces, but/so other things start to suffer.

So one of the reasons it's been hard to write much of anything is because I've been spending far more time in Recovery Mode. Like, Hardcore Recovery Mode. (Fibro's one of the biggest reasons I don't have children of my own, although there are others.)

It's no surprise that the only things I've posted this year are comfort fic (forth, the fifth) and feral birthday gifts (weirdly specific AUs) where I had people cheering me on as I was writing AND a deadline. That encouragement piece has really, until now, been the driver. I'm finally starting to crawl out of the hole, finally looking at WIPs again, but.

And the funniest/worst piece is that I hadn't really realized up until just recently - when I started climbing out of the hole - what it was. It isn't necessarily writing burnout - because I still wanted to write - but it's other burnout, spending my energy elsewhere on other people and then needing to plug myself in like a dead phone. (My other favorite fibro analogy is the mobile phone with a shit battery and too many apps analogy.)

you just get tired of being tired, my friends. you get really tired of being tired.